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Clinical Child Psychology and Psychiatry, Vol. 12, No. 4, 599-610 (2007)
DOI: 10.1177/1359104507080995
© 2007 SAGE Publications

Quality of Life from Research and Clinical Perspectives: An Example from Paediatric Psycho-oncology

Alain Di Gallo

University Psychiatric Clinics, Basel, Switzerland, alain.digallo{at}unibas.ch

Rosemarie Felder-Puig

St Anna Children's Hospital, Vienna, Austria

Reinhard J. Topf

St Anna Children's Hospital, Vienna, Austria

In clinical oncology and research, health-related quality of life (HRQL) of patients has increasingly gained attention. Although there is agreement that HRQL is a multidimensional construct incorporating primarily the patient's evaluation of his/her life, the construct lacks a uniform model of conceptualization. This article briefly outlines definitions and methods of assessing quality of life in children and adolescents. The case report of a 10-year-old boy who underwent hematopoietic stem cell transplantation views HRQL from various perspectives. Self- and proxy assessments are compared, and the expertise of psychotherapeutic work is combined with data gathered by standardized questionnaires.

Key Words: childhood cancer • quality of life • self-report/proxy report • stem cell transplantation


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